This is a partial list of external examples of policies and processes using private sector data in research. Although not comprehensive, these examples are intended to support stakeholders in future data sharing agreements. Please contact IARD if you have additional useful examples.
See also Data Sharing Guiding Principles.
BMJ: "Sharing the full data sets underlying the results in your article brings many benefits. It enables reuse, reduces research waste, and promotes collaboration. Greater transparency increases trust in research results by allowing results to be independently verified. These benefits lead to a more reliable evidence base and a healthier world."
International Journal of Market Research: “requests all authors submitting any primary data used in their research articles to be published in the online version of the journal, or provide detailed information in their articles on how the data can be obtained. This information should include links to third-party data repositories or detailed contact information for third-party data sources.”
Journal of Health Psychology: “Where an author is not sharing data, we recommend that a statement is included to detail why data is not being shared. For example:”
“The data that support the findings of this study are available from [THIRD PARTY NAME] but restrictions apply to the availability of these data, which were used under license for the current study, and so the data are not publicly available. Data are however available from the authors upon reasonable request and with permission of [THIRD PARTY NAME]. Ethics approval, participant permissions, and all other relevant approvals were granted for this data sharing.”
“The data generated during and/or analysed during the current study are not publicly available nor are they available on request due to [REASON WHY DATA ARE NOT PUBLICLY AVAILABLE NOR AVAILABLE ON REQUEST].”
“The data generated during and/or analysed during the current study are not publicly available due to [REASON WHY DATA ARE NOT PUBLICLY AVAILABLE] but are available from the corresponding author on reasonable request. Ethics approval, participant permissions, and all other relevant approvals were granted for this data sharing.”
Oxford Academic: “The data underlying this article were provided by [third party] under licence /by permission. Data will be shared on request to the corresponding author with permission of [third party].”
Lachenmeier, D.W., Monakhova, Y.B., Rehm, J. (2014). Influence of unrecorded alcohol consumption on liver cirrhosis mortality. World Journal of Gastroenterology. 20(23): 7217-7222. DOI: 10.3748/wjg.v20.i23.7217
Chrystoja, B. R., Monteiro, M. G., Owe, G., Gawryszewski, V. P., Rehm, J., and Shield, K. (2021) Mortality in the Americas from 2013 to 2015 resulting from diseases, conditions and injuries which are 100% alcohol-attributable. Addiction, 116: 2685– 2696. https://doi.org/10.1111/add.15475
Doran, C.M., Byrnes, J.M., Cobiac, L.J., Vandenberg, B. and Vos, T. (2013), Estimated impacts of alternative Australian alcohol taxation structures on consumption, public health and government revenues. Medical Journal of Australia, 199: 619-622. https://doi.org/10.5694/mja13.10605
Anderson, P., Jané Llopis, E., O’Donnell, A., Manthey, J., & Rehm, J. (2020). Impact of low and no alcohol beers on purchases of alcohol: Interrupted time series analysis of British household shopping data, 2015–2018. BMJ Open, 10(10), e036371. doi: 10.1136/bmjopen-2019-036371
Rehm, J., Tran, A., Gobiņa, I., Janik-Koncewicz, K., Jiang, H., Kim, K. V., Liutkutė-Gumarov, V., Miščikienė, L., Reile, R., Room, R., Štelemėkas, M., Stoppel, R., Zatoński, W. A., & Lange, S. (2022). Do alcohol control policies have the predicted effects on consumption? An analysis of the Baltic countries and Poland 2000-2020. Drug and alcohol dependence, 241, 109682. https://doi.org/10.1016/j.drugalcdep.2022.109682
Jernigan, D., & Ross, C. S. (2020). The alcohol marketing landscape: Alcohol industry size, structure, strategies, and public health responses. Journal of studies on alcohol and drugs. Supplement, Sup 19(Suppl 19), 13–25. https://doi.org/10.15288/jsads.2020.s19.13
World Health Organization (WHO)
Global status report on alcohol and health (2018)
Organisation for Economic Cooperation and Development (OECD)
OECD Policy Responses to Coronavirus (COVID-19): The effect of COVID-19 on alcohol consumption, and policy responses to prevent harmful alcohol consumption (19 May 2021)
United Nations (UN)
Basu, S. (2013) Expert Paper No. 2013/10: The changing landscape of non-communicable diseases and associated risk factors. New York: United Nations Department of Economic and Social Affairs, Population Division.
Report commissioned by Health and Consumer Protection Directorate-General: Anderson, P. & Baumberg, B. (2006) Alcohol in Europe: A public health perspective | A report for the European Commission. London: Institute of Alcohol Studies.